Useful Resources from eCare Diary
There are a number of organizations which provide websites with useful information. eCare Diary has organized them below for your convenience.
Disability.gov - This is the federal government website for comprehensive information on disability programs and services in communities nationwide.
HealthCare.gov - Learn how the health care law affects you. This is the official site of the Health Insurance Marketplace. See your health insurance choices.
Medicare – Official U.S. government site for Medicare information.
Medicaid - Official U.S. government site for Medicaid information.
US Administration on the Aging – This agency provides home and community-based services to millions of senior citizens.
US Department of Health and Human Services - A federal website designed to help people stay healthy. Healthfinder.gov features links tomore than 6,000 government and nonprofit health information resources on hundreds of health topics including personalized health tools such as health calculators, activity and menu planners, recipes and online checkups. In addition, the site offers tips for caregivers and health news. Information is provided in English and Spanish. This agency runs all federal housing assistance programs.
US Department of Housing and Urban Development - This agency runs all federal housing assistance programs.
VA Caregiver Support – This federal website provides information on services designed specifically to support Family Caregivers for veterans.
AARP – This is the leading association for those over 50 and it has a great deal of information for senior citizens including long term care insurance.
AgingCare.com - AgingCare.com has a comprehensive collection of articles, news, product information and a team of experts to help those who care for their loved ones.
AGIS Network - AGIS.com provides education, support, expert advice, local resources and a vibrant community for caregivers and families of the elderly.
Allsup Medicare Advisor - Allsup Medicare Advisor is a fee-based Medicare plan selection service helping Medicare eligible individuals, either alone or with their caregivers, to choose the Medicare option that best meets their needs.
American Association of Caregiving Youth – The American Association of Caregiving Youth (AACY) mission is to recognize, support, and promote the awareness of dual role youth that are both students and caregivers within their families. AACY strives to address the needs of pre-teens, teens, families, and professionals through education and awareness, research, and direct services in cooperation with social, education, healthcare, government, and community corporations, organizations, and agencies.
American Association of Homes and Services for the Aging – This association represents community based services, assisted living facilities nursing homes and continuing care communities.
Assisted Living Federation of America – As the largest national association exclusively dedicated to professionally operated assisted living communities for seniors, the Assisted Living Federation of America provides an interactive directory of professionally managed senior living communities. ALFA works to influence public policy by advocating for informed choice, quality care, and accessibility for all Americans. Visit their Web site for information.
CareCentral - CareCentral is a personalized web service that allows users to create a private, secure online community for loved ones. It is a free tool to update friends and family, organize and schedule offers to help and providing support when it is most needed.
CareConnection.com - CareConnection is a website devoted to family caregivers, with up-to-date health news, elder care specialists, experts, insurance help and coping advice. This site, owned by HealthCentral.com, offers resources, interactive tools and connections to leading experts and caregivers who share their experiences.
Caregiver.com - Caregiver.com produces Today's Caregiver magazine, the first national magazine dedicated to caregivers, the "Sharing Wisdom Caregivers Conferences" and website which includes topic specific newsletters and online discussion lists.
Caringforthecaregiver.org- Caringforthecaregiver.org is a website committed to getting caregivers to care for themselves.
Caregivinghelp.org - CAREgivinghelp.org is free, interactive website featuring short videos and text educational modules on a variety of caregiving topics, frequently asked questions that cover the different phases of caregiving, an online community monitored by a geriatric care specialist, exercises to help caregivers "take a moment" for themselves and a comprehensive listing of resources.
CarePages - CarePages are free, private web pages that make it easy to reach out and receive messages of support and to stay connected to family, co-workers and others who care about you and your loved one. The service is available to anyone caring for a loved one, but may be particularly helpful to those who have recently found themselves in a care giving role.
Closure - an initiative to change expectations for end-of-life. Our goal is to empower consumers and healthcare professionals with easy-to-access, simple-to-understand information and resources to make educated decisions about end-of-life care.
Compassion & Choices - Compassion & Choices promotes informed end-of-life decision making by educating the public and advising health care professionals.
DOROT - Enhancing the lives of the elderly and bringing generations together. DOROT features a call center for caregiver support and an extensive list of caregiving workshops. Serving the New York/New Jersey area.
Family Caregiver Alliance - FCA is the lead agency in California's system of Caregiver Resource Centers. FCA provides support and help to family caregivers and champions their cause through education, services, research and advocacy. Services are specific to California, although information can be access nationally.
Friends' Health Connection - Friends' Health Connection links persons with illness or disability and their family caregivers with others experiencing the same challenges.
National Adult Day Care Services Association – This association represents adult day care providers.
National Alliance for Caregiving - Although not an organization that helps family caregivers directly, The National Alliance for Caregiving's website helps family caregivers learn about information, videos, pamphlets etc that have been reviewed and approved as providing solid information.
National Association of Home Care and Hospice – This association represents home care and hospice providers.
National Family Caregivers Association – The National Family Caregivers Association educates, supports, empowers and speaks up for the more than 65 million Americans who care for loved ones with a chronic illness or disability or the frailties of old age. NFCA reaches across the boundaries of diagnoses, relationships and life stages to help transform family caregivers' lives by removing barriers to health and well being.
National Guardianship Association – NGA's mission is toadvance the nationally recognized standard of excellence in guardianship. The association supports and educates guardians, fiduciaries and conservators, promoting independence and dignity for the most vulnerable individuals. Through education programs, development of professional standards, and practice resources, NGA supports its members in providing appropriate alternatives to their clients.
Rosalynn Carter Institute for Human Development - RCI provides educational programs for caregivers, conducts research and disseminates information about aging.
Well Spouse Association - Well Spouse is a national membership organization that gives support to husbands, wives and partners of the chronically ill and/or disabled. Well Spouse has a network of support groups and also a newsletter for spouses.
Useful Sources on Chronic Conditions
Alzheimer’s Foundation of America
American Cancer Society
American Heart Association
National Parkinson’s Foundation
Michael J. Fox Parkinson’s Foundation
Parkinson’s Disease Foundation
Multiple Sclerosis Society
The Foundation for AIDS Research
Lewy Body Dementia Association (LBDA) - LBDA supports those affected by Lewy Body dementias through outreach, education and research.
Other Helpful Links
www.AccuPax.com - AccuPax is a specialty pharmacy that sorts, combines and packages a thirty day supply your medications in individual packets for each time of day all in accordance with your doctor’s instructions. The strip of packets is enclosed in a special dispensing box as shown at left. The packaging service is free and is ideally suited for seniors taking multiple medications.
Caring From A Distance - This is an organization which helps people with long distance caregiving.
Enrich Your Caregiving Journey - A book about caregiving that focuses on how-to's of caregiver well-being and effectiveness. If you are a caregiver or will be some day, this is a must read.
Veterans Home Care - Their program provides immediate assistance with securing financial benefits that are available for veterans, or their surviving spouses, for non-service connected disabilities. The Veterans Administration has established a pension program whereby personal care and attendant home services may be paid for.
Serenity Care Senior Health Advisors - This organization provides guidance, care assistance and advocacy for caregivers and their loved ones.
Next Stage Senior Care - This organization provides in-home care services.