Useful Resources from eCare Diary

There are a number of organizations which provide websites with useful information.  eCare Diary has organized them below for your convenience.

Government Resources

Disability.gov - This is the federal government website for comprehensive information on disability programs and services in communities nationwide.

HealthCare.gov - Learn how the health care law affects you. This is the official site of the Health Insurance Marketplace. See your health insurance choices.
 

MedicareOfficial U.S. government site for Medicare information. 

Medicaid - Official U.S. government site for Medicaid information.

US Administration on the Aging This agency provides home and community-based services to millions of senior citizens.

US Department of Health and Human Services - A federal website designed to help people stay healthy. Healthfinder.gov features links tomore than 6,000 government and nonprofit health information resources on hundreds of health topics including personalized health tools such as health calculators, activity and menu planners, recipes and online checkups. In addition, the site offers tips for caregivers and health news. Information is provided in English and Spanish.
This agency runs all federal housing assistance programs.

US Department of Housing and Urban Development
- This agency runs all federal housing assistance programs.

VA Caregiver Support
This federal website provides information on services designed specifically to support Family Caregivers for veterans.




Helpful Associations

AARP This is the leading association for those over 50 and it has a great deal of information for senior citizens including long term care insurance.

AgingCare.com - AgingCare.com has a comprehensive collection of articles, news, product information and a team of experts to help those who care for their loved ones.

AGIS Network - AGIS.com provides education, support, expert advice, local resources and a vibrant community for caregivers and families of the elderly. 

Allsup Medicare Advisor - Allsup Medicare Advisor is a fee-based Medicare plan selection service helping Medicare eligible individuals, either alone or with their caregivers, to choose the Medicare option that best meets their needs.

American Association of Caregiving Youth The American Association of Caregiving Youth (AACY) mission is to recognize, support, and promote the awareness of dual role youth that are both students and caregivers within their families. AACY strives to address the needs of pre-teens, teens, families, and professionals through education and awareness, research, and direct services in cooperation with social, education, healthcare, government, and community corporations, organizations, and agencies.

American Association of Homes and Services for the Aging This association represents community based services, assisted living facilities nursing homes and continuing care communities.


American Association for Geriatric Psychiatry - The American Association for Geriatric Psychiatry (AAGP) is the only national association that has products, activities and publications, which focus exclusively on the challenges of geriatric psychiatry.

Assisted Living Federation of America As  the largest national association exclusively dedicated to  professionally operated assisted living communities for seniors, the  Assisted Living Federation of America provides an interactive directory  of professionally managed senior living communities. ALFA  works to  influence public policy by advocating for informed choice, quality care,  and accessibility for all Americans. Visit their Web site for  information.

CareCentral  - CareCentral is a personalized web service that allows users to create a private, secure online community for loved ones. It is a free tool to update friends and family, organize and schedule offers to help and providing support when it is most needed.

CareConnection.com - CareConnection is a website devoted to family caregivers, with up-to-date health news, elder care specialists, experts, insurance help and coping advice. This site, owned by HealthCentral.com, offers resources, interactive tools and connections to leading experts and caregivers who share their experiences.

Caregiver.com - Caregiver.com produces Today's Caregiver magazine, the first national magazine dedicated to caregivers, the "Sharing Wisdom Caregivers Conferences" and website which includes topic specific newsletters and online discussion lists.

Caringforthecaregiver.org- Caringforthecaregiver.org is a website committed to getting caregivers to care for themselves.

CarePages - CarePages are free, private web pages that make it easy to reach out and receive messages of support and to stay connected to family, co-workers and others who care about you and your loved one. The service is available to anyone caring for a loved one, but may be particularly helpful to those who have recently found themselves in a care giving role.

Closure - an initiative to change expectations for end-of-life. Our goal is to empower consumers and healthcare professionals with easy-to-access, simple-to-understand information and resources to make educated decisions about end-of-life care.

Compassion & Choices - Compassion & Choices promotes informed end-of-life decision making by educating the public and advising health care professionals.

DOROT - Enhancing the lives of the elderly and bringing generations together.  DOROT features a call center for caregiver support and an extensive list of caregiving workshops.  Serving the New York/New Jersey area.

Family Caregiver Alliance - FCA is the lead agency in California's system of Caregiver Resource Centers. FCA provides support and help to family caregivers and champions their cause through education, services, research and advocacy. Services are specific to California, although information can be access nationally.

Friends' Health Connection - Friends' Health Connection links persons with illness or disability and their family caregivers with others experiencing the same challenges.

International Council on Active Aging - ICAA promotes active aging as a solution to promoting the quality of life for older adults.

National Adult Day Care Services Association This association represents adult day care providers.

National Alliance for Caregiving - Although not an organization that helps family caregivers directly, The National Alliance for Caregiving's website helps family caregivers learn about information, videos, pamphlets etc that have been reviewed and approved as providing solid information.

National Association of Home Care and Hospice This association represents home care and hospice providers.

National Council on Aging -
The National Council on Aging (NCOA) is the nation’s leading nonprofit service and advocacy organization representing older adults and the community organizations that serve them.

NIH Senior Health -
This category offers tips on how to stay healthy, get good health care and manage lifestyle changes as you age.

Caregiver Action Network
The Caregiver Action Network educates, supports, empowers and speaks up for the more than 65 million Americans who care for loved ones with a chronic illness or disability or the frailties of old age. CAN reaches across the boundaries of diagnoses, relationships and life stages to help transform family caregivers' lives by removing barriers to health and well being.

National Guardianship Association  NGA's mission is to advance the nationally recognized standard of excellence in guardianship. The association supports and educates guardians, fiduciaries and conservators, promoting independence and dignity for the most vulnerable individuals. Through education programs, development of professional standards, and practice resources, NGA supports its members in providing appropriate alternatives to their clients.

Rosalynn Carter Institute for Human Development - RCI provides educational programs for caregivers, conducts research and disseminates information about aging.

Well Spouse Association - Well Spouse is a national membership organization that gives support to husbands, wives and partners of the chronically ill and/or disabled. Well Spouse has a network of support groups and also a newsletter for spouses.



Useful Sources on Chronic Conditions

Alzheimer’s Foundation of America

Alzheimer’s Association


American Cancer Society


American Heart Association


National Parkinson’s Foundation

Mesothelioma Group

Michael J. Fox Parkinson’s Foundation


Parkinson’s Disease Foundation


Arthritis Foundation


Multiple Sclerosis Society


The Foundation for AIDS Research

Lewy Body Dementia Association (LBDA) - LBDA supports those affected by Lewy Body dementias through outreach, education and research.



Other Helpful Links

Caring From A Distance - This is an organization which helps people with long distance caregiving.

Enrich Your Caregiving Journey - A book about caregiving that focuses on how-to's of caregiver well-being and effectiveness.  If you are a caregiver or will be some day, this is a must read.

Health & Aging: Seniors and Swimming - This blog explores facts and figures surrounding swimming for senior citizens.

Next Stage Senior Care - This organization provides in-home care services.

Older Americans Behavioral Health: Alcohol Misuse and Abuse Prevention - The Substance Abuse and Mental Health Services Administration (SAMHSA) and Administration on Aging (AoA) recognize the value of strong partnerships for addressing behavioral health issues among older adults.

Seniors' Guide to Aging at Home - The guide to aging at home safely and with dignity.

Seniors' Addiction Prevention Guide - This guide contains more than 50 valuable resources from high-quality sources such as government and education sites, leading professional journals, organizations devoted to substance abuse and addiction awareness and treatment, and other informative and reputable sources.

Serenity Care Senior Health Advisors - This organization provides guidance, care assistance and advocacy for caregivers and their loved ones.

Veterans Home Care - Their program provides immediate assistance with securing financial benefits that are available for veterans, or their surviving spouses, for non-service connected disabilities. The Veterans Administration has established a pension program whereby personal care and attendant home services may be paid for.
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